How are we supposed to keep track of everything?

Author:  Gesche Tallen, MD, PhD, Editor:  Maria Yiallouros, Reviewer:  Prof. Dr. med. Dr. h.c. Günter Henze, English Translation:  Hannah McRae, Last modification: 2020/05/14 https://kinderkrebsinfo.de/doi/e1994

It is recommended to carry a notebook for collecting all important information. This helps to better and more easily deal with the daily routines during treatment:

• Names and areas of expertise of each doctor, nurse, social worker, and all other caregiver staff, with whom you and your child have regular contact.
• Questions about what has been discussed or what is happening and why. It is likely that your questions will come up after you’ve had a meeting, or that you will be nervous and forget your questions during a meeting. In this context, it is very important to remember: there is no such thing as a dumb question!
• Results from blood work and tests, as well as medications prescribed to your child.
• Record any problems that arise between hospital stays.
• …as well as anything else you feel you should remember.

It is also recommended to schedule regular family meetings with your caregivers, so that you have the chance to discuss all of your current questions.